Campaigning for fair and equal rights for people with Down’s syndrome

Every single person with Down’s syndrome has the right to live the life they choose. Our current campaign #lostinlockdown: Our Future Matters calls on the Government to give young people with Down’s syndrome the option to repeat a year of college.

How you can support our campaign

The coronavirus pandemic has created an education crisis for all children and young people. This has been intensified for those with Down’s syndrome, many of whom have not been able to attend college due to being on the Critically Extremely Vulnerable list. They have not had the face-to-face interactions, repetition of real-life skills and opportunity for work experience needed to successfully transition into adulthood. This has resulted in extreme learning loss, which if not addressed will result in a lost generation that have not had the opportunities to build the learning and life skills needed to engage fully in society.

Sign our petition here.

Use the resource links below to help us lobby the Government by writing to your local MP and calling for action on this issue.

You can also help by spreading the word on social media.

If you require more information about the campaign please contact



Download a letter to MP template here

What We Do


Every year, on 21st March we mark World Down Syndrome Awareness Day. It’s celebrated on the 21st day of the third month because people with Down’s syndrome have three copies of chromosome 21. Because chromosomes look like socks, we also encourage people to rock their socks by wearing an odd pair! World Down Syndrome Day shines a light on the profile and capabilities of people with Down’s syndrome. In recent years, we’ve shared our message of young people showing their potential with #Ihavepotential.

Follow our campaigns on our social media platforms on FacebookTwitter & Instagram

Get involved

Awareness Talks & Assemblies

Thousands of Cheshire school children across the county have benefitted from our awareness assemblies, which provide accurate information about Down’s syndrome and inclusion. We have also presented information at Rotary, Mothers’ Union and other community group events. If you’d like to book an awareness assembly for your Cheshire school, college or university please contact us.

Get involved

Makaton Training

We provide Makaton training for health and education professionals, as well as community groups and local businesses. Makaton uses signs and symbols to help people to communicate and is widely used within the Down’s syndrome community. We’ve recently led a campaign to make Northwich Makaton-friendly and we worked with Northwich BID to deliver taster Makaton sessions to small businesses in the area so that people who use the language can communicate with their local service providers. We hope to roll this initiative out throughout Cheshire.

Get involved


Spreading the national Down’s Syndrome Association message, our Tell it Right, Start it Right posters are designed to inform health professionals and encourage them to use the right language and terminology when supporting a person with Down’s syndrome and their family. We also produce maternity packs for local hospitals for midwives to give to new parents, general information about our charity and a comprehensive calendar of our events with details of how families can book on to them.

In addition, our quarterly digital newsletter ‘DownTime’ publishes our latest charity news and events, as well as relevant national and international stories. If you would like to become one of our community champions by helping us to distribute information, please contact us.

Get involved